My son Connor Peter was born on April 8, 2009, he was diagnosed with Hypoplastic Left Heart Syndrome (HLHS) when I was five months pregnant. He had his first open heart surgery, Norman procedure, when he was two days old. He had some complications that included breathing problems and also had a staff infection while inpatient at the hospital and we were discharged when he was three months old.
Name : Devlyn M
Born : August 31, 2012
CHD Diagnosis: Tetralogy of Fallot
Devlyn was diagnosed pre-birth with Tetralogy of Fallot. His mother Holly was referred to a pediatric cardiologist at 22 weeks into her pregnancy after several unsuccessful images of Devlyn's heart. Additional testing during Holly's pregnancy was done to rule out any other potential heart defects. Devlyn's Dad, Dave, was born with an Atrial Septial Defect which was repaired at the age of 7.
I'm writing to you with our story on our daughter, Molly Renee Leary. She is a four year old little girl that has had a very rough start to her life. When I was 20 weeks pregnant we found out we were having a girl and we were on top of the world. We had tried so hard to get pregnant and nothing was going to bring us down until we received a call from the OB 8 days later telling us they were sending me for a level 2 ultrasound because they think they saw something wrong with the baby's heart. Within a week we had an appointment at New England Medical Center.
Oh man...it can't be happening now. This is a big game...ok calm down...it will stop soon. Deep breaths...it always stops...relax. Nothing helped. I can't even count the number of times I just played through what felt like a heart attack.
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