SAVE THE DATE: 2016 Keep the Beat CHD Awareness Walk

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Submitted by annamaryc on Thu, 10/01/2015 - 12:04

It's My Heart New England's 6th Annual Keep the Beat Walk for CHD Awareness, will be held on Sunday, June 26, 2016 at Endicott Park in Danvers, MA. This event is a 1 or 2 mile or 5K Walk, followed by a FREE family picnic for all registered walkers. It's a great way to connect with and get to know over 40 heart families.

Registration is open NOW at walk.ItsMyHeartNewEngland.org

Thank you for your support and we look forward to seeing you at this fun event.

2016 KTB Walk Committee

Running the Ride to Remember

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Submitted by annamaryc on Fri, 09/18/2015 - 00:12

It's My Heart New England gets amazing support from so many people. One heart dad is taking his support a long way... 106 miles to be exact!! On Friday, September 18, Officer Brandon O'Neill will lace up his sneakers to RUN the 3rd annual Ride to Rememer that is in memory of fallen Police Officers. Brandon will also be running to support It's My Heart New England in memory of his daughter Savannah-Maria O'Neill who passed away this past December at age 9 from multiple CHDs.

6th Annual Craft Fair and Bake Sale

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Submitted by annamaryc on Sat, 09/05/2015 - 22:04

It's My Heart - New England is excited to announce our 6th Annual It’s My Heart New England Craft Fair and Bake Sale that will take place on Sunday, November 8th, 2015 at our new location in the United Martial Arts Center, 20 Locust Street, #100, Danvers, MA, from 10am to 3pm.

Come on down and enjoy this free event. There will be unique gifts, raffle items, and yummy bakery items. We will also have free fun activities for the kids like arts and crafts and temporary tattoos. Polished Girlz will be there to paint nails for women and kids for free.

2015 Walk for CHD Awareness

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Submitted by annamaryc on Thu, 04/16/2015 - 13:14

We would love for you to join us on Sunday, June 28, 2015 for our 5th Annual Keep the Beat CHD Awareness Walk at Endicott park in Danvers, MA.
The day is shaping up to be a wonderful event and we plan to welcome over 40 heart families (and their 500 friends) from all over New England!
Come and meet new friends or spend some time with old ones.
The Walk, Lunch and all FUN Activities are provided FREE to registered participants, so register yourself and your team today.

Painting with a Purpose for It's My Heart New England

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Submitted by annamaryc on Wed, 03/25/2015 - 22:09

It's My Heart New England is having a Painting With a Purpose Fundraiser at Painting with a Twist (448A N Main St, East Longmeadow, Massachusetts 01028) on Sunday April 19 from 6:30 - 8:30 PM to raise awareness for Congenital Heart Defects (the #1 birth defect in the world) and It's My Heart New England.

50% of the proceeds will benefit It's My Heart. Seats are $35 each.

This is a two hour painting class where an instructor will take the class through the steps to create a painting. At the end of the class you will walk out with your very own painting.

CHD Awareness Scholarship

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Submitted by annamaryc on Thu, 01/22/2015 - 23:16

Congratulations and good luck in the fall to our 2015 CHD Awareness Scholarship winners!

* Molly Glynn, Shrewsbury High School, MA

* Abigail Hoffman, Peabody Veteran's Memorial High School, MA

* Jeffrey King, University of New Hampshire

* Natali Masarshaya, University of Massachusetts, Boston

* Michael Stefanelli, Windham High School, NH

It’s My Heart New England CHD Awareness
2015 College Scholarship Program

Purpose

Heart Week Heart Social

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Submitted by annamaryc on Thu, 01/22/2015 - 23:04

Join It’s My Heart New England Chapter as we celebrate Heart Week by hosting our 3rd Annual HEART SOCIAL with food, music, games, crafts, door prizes, friends, and fun!!

All are welcome - CHDrs, family, friends, supporters!

When? Saturday, February 14, 2015; 1-4pm

Where? Boston University FitRec Center
915 Commonwealth Ave
Boston, MA 02115

Cost? Event, Lunch, and ALL activities are Free!!
Parking is NOT included with registration, but is
$10 at the Agganis arena garage (925 Comm
Ave)

Heart Week 2015

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Submitted by annamaryc on Mon, 01/12/2015 - 13:00

Stay tuned for ALL the great ways we are celebrating Heart Week 2015!

Meet Adrianna

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Submitted by annamaryc on Tue, 12/02/2014 - 12:44

When I was 29 weeks pregnant we found out from my OB/GYN at Melrose Wakefield Hospital that our baby had an abnormal heart beat and we would need to get an Echo-cardiogram at Tufts Medical Center. It was after that first ECHO that we found out that our baby had a congenital heart defect called Tetrology of Fallot. We had ECHOs scheduled every month at Tufts until our baby was born. Looking back, it was neat to have so many because we now have tons of ultra sound pictures from the whole pregnancy. My care was transferred from that point to Tufts Medical Center.

Meet Kayla

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Submitted by annamaryc on Tue, 12/02/2014 - 12:38

On November 19, 2009 my husband Larry and I went into the ultrasound room so happy and waiting to find out the sex of our second child. Before too long we knew things weren't right and what we would find out over the next four days would crush us. We were sent over to Childrens Hospital Boston Advanced Fetal Care unit and soon became aware of what was wrong. Our baby girl had a rare severe anomaly of the heart called Ebsteins Anomaly. Part of her brain hadn't developed and she had a large cleft lip and cleft palate. It did not look good and we were given the option to abort.

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